if you are a parent and would like more information
We would like to invite parents and carers with experience of paediatric sepsis (surviving and bereaved) to consider the following opportunities to contribute to paediatric post sepsis research. You are very welcome to express interest in both activities, if you want.
- Participate in research activities, such as:
- Individual interviews – a one-on-one conversation where you can share your experiences (about 1 hour);
- Online surveys or polls – a way to provide feedback in your own time (about 20–30 minutes);
- If interested, additional focus groups or workshops – a group discussion with other families and carers (about 1 hour).
Each activity will be explained clearly beforehand, and you will receive information in advance and be asked to consent to participate. Taking part in any activity is completely voluntary.
Please click on the “Register your interest here” link if you are interested in participating in an interview and/or focus group.
- Join our Paediatric Post Sepsis Research Consumer Advisory Group. This group will help guide an important national research program focused on improving care and support for children and families affected by sepsis.
The purpose of this group is to make sure that the voices and experiences of families, parents, and carers are central to the research. As a member, you would help shape how the research is designed, how it is carried out, and how the findings are shared to improve care in the future. Members will be paid for their time and expertise, following national guidelines for involving consumers in research.
See more details in EOI below.
Expression of Interest – Consumer Advisory Group Member
Expressions of Interest are invited for membership of the Paediatric Post Sepsis Care (PPSC) Consumer Advisory Group (CAG).
Applications are due by Friday 2nd October.
The PPSC and the CAG Co-Chairs, Mary (parent bereaved by sepsis) and Dawn (parent of sepsis survivor), are seeking expressions of interest for approximately ten consumer representatives to join the PPSC CAG.
We are seeking consumer representatives who are parents/carers of surviving children and those who are bereaved. Membership of the CAG will be for 14 months from September 2026 to October 2027, with possibility of extension.
- Attend online CAG meetings (at a time to be determined by members).
- Share your individual experience and perspectives related to paediatric post sepsis survivorship or bereavement.
- Participate in discussions during meetings and communications between meetings (on occasion), in ways that feel appropriate and comfortable.
- Provide feedback and guidance on presented research priorities, questions, activities, and findings.
- Provide feedback on materials for research participants (eg. information sheets, consent forms, interview guides).
- Provide feedback on the consumer engagement process.
- To shape research priorities and process through sharing your lived experience.
- Enhance your consumer representative and career portfolio.
- Gain valuable experience and build capacity through committee experience.
- Along with other consumer representatives, provide a consumer perspective to improve health services and the experience of others using the service.
This opportunity would suit a consumer with the following skills and attributes:
- Experience as a parent or carer of a child diagnosed with sepsis.
- Community links and networks that enable an ability to represent the consumer perspective.
- Ability to communicate a consumer perspective and respect and appreciate different perspectives expressed within the CAG.
- Willingness to share experiences, those of their family and members of the community.
- Ability to raise issues, respect others’ perspectives and help the CAG to consider issues from different perspectives.
- 1-2 hour meeting, virtually through Zoom every 3 months.
- 1 hour/quarter for out of session review of documents and meeting preparation.
- Membership will be for 13 months, as above.
- Support will be provided before, after and during meetings from PPSC Social Worker (psychosocial support), PPSC Clinical Nurse (research processes) and Co-Chairs.
- Agreement to participate in required training; remuneration provided for time.
- Participation is voluntary, and you can withdraw at any time, by giving written notice to the Co-Chairs.
Consumer payment will be aligned with Sepsis Australia’s Consumer Partnership and Advocacy Program (SACPAP) Remuneration Guide. Further information will be provided with an offer of appointment to the role.
Complete this application form HERE
For further information please contact Alana English
Email: Alana.English@health.qld.gov.au
Ph: 0493 013 317